tag:blogger.com,1999:blog-4879615387850345622.post7134610955725445228..comments2023-07-17T23:10:02.228+10:00Comments on Discombobula: CFS Awareness DaySuehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-4879615387850345622.post-87225484398997340122009-05-13T05:34:00.000+10:002009-05-13T05:34:00.000+10:00I am endlessly grateful when I find out that somet...I am endlessly grateful when I find out that something I self-diagnosed as failure of the will is, in effect, something over which I had no control, a legitimate illness or bodily malfunction. I am pleased to hear that you have recovered from yours.Barbarahttp://www.blogger.com/profile/17078914306329037697noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-11407236337231609472009-05-13T06:29:00.000+10:002009-05-13T06:29:00.000+10:00Thank you for this, which is probably the clearest...Thank you for this, which is probably the clearest explanation of ME I've read.<br><br>I am always cheered by the (possibly fictional) statistic that is often quoted that after seven years, every cell in the body has been completely renewed.<br><br>I'm glad you've managed to recover from this debilitating diseaseTesshttp://www.anchormast.comnoreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-558585218142119952009-05-13T09:23:00.000+10:002009-05-13T09:23:00.000+10:00Barbara - yes!! That sort of experience is life-c...Barbara - yes!! That sort of experience is life-changing in itself, isn't it? Makes you much more willing to validate yourself and what you are experiencing rather than just simply listen to that (stupid) voice in your head saying it's just you and your laziness. I'm glad you recovered from yours too (I presume) :)<br><br>Tess - I like that statistic too and it is one which occurs to me often, even though in another way it makes little sense. but yeah, me too, I'm cheered by that too :)Suehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-79471295506015197712009-05-13T13:39:00.000+10:002009-05-13T13:39:00.000+10:00This is how I feel about fibromyalgia, a lot of pe...This is how I feel about fibromyalgia, a lot of people don't believe in it. I am thankful mine is not worse, but its so unpredictable, it will flare up at the worst times, sometimes i just can't get out of bed. But I am not nearly as bad as so many other people I know!<br>CSF and Fibro are such close cousins.<br><br>I am soooooooooo glad you you are better!Barbara aka Laylahttp://www.blogger.com/profile/11100008292699584336noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-3265187772025463072009-05-13T14:10:00.000+10:002009-05-13T14:10:00.000+10:00Thanks, BBQ! Oh, yeah, CFS and fibro are definite...Thanks, BBQ! Oh, yeah, CFS and fibro are definitely first cousins.<br><br>Sheesh, we have so many commonalities - taste in men, taste in chronic illnesses :D Hah.<br><br>I am thankful yours isn't worse too but still, having it at all would be bad enough. I hope you look after yourself during flare-ups. It's so easy to be horrible to ourselves.Suehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-28952968900906462382009-05-13T16:19:00.000+10:002009-05-13T16:19:00.000+10:00I'm so glad you are regaining, or have regaine...I'm so glad you are regaining, or have regained, your health. Your term "CFS land", that you used in your earlier bloggings, sounds truly like a different existence from feeling healthy. <br><br>I'd like to pass this on...do you mind? And, I'm going to check out that book over there -->. The "Natural Capitalism" one. ;-)Jenniferhttp://www.blogger.com/profile/14314188298401214441noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-27350607274927163762009-05-13T16:27:00.000+10:002009-05-13T16:27:00.000+10:00No, of course - pass it on, Jennifer.And you were ...No, of course - pass it on, Jennifer.<br><br>And you were the one who recommended Natural Capitalism to me, actually :)Suehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-10798544758429453692009-05-13T23:10:00.000+10:002009-05-13T23:10:00.000+10:00Thank you for writing this, Sue. My life turned up...Thank you for writing this, Sue. My life turned upside down almost seven years ago, with chronic pain, & much later, a diagnosis of fibromyalgia. Cymbalta has an ad out that says in one line, what I would try & express to friends "With Fibromyalgia, pain is the price you may pay for almost everything you do." There are many in the medical profession that still don't believe that.<br><br>I love hearing part of your story, and hearing how your persevering paid off.Sherryhttp://www.blogger.com/profile/15719438274781012422noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-48065551650622786112009-05-14T00:13:00.000+10:002009-05-14T00:13:00.000+10:00Nothing like chronic unbelieved illness to test yo...Nothing like chronic unbelieved illness to test your own sanity is there, Sherry? Thanks for the feedback. I am on a CFS email list and posted the link there. I have had about 6 or 7 people come and read it and was doing my usual sort of nail-biting, wondering if writing about my recovery would give people hope or make them feel worse? I would hate to think that. But then, I remember when I was ill, reading and hearing about other people that had recovered was encouragement to me, so I guess I just have to go with that, huh.<br><br>It really is so difficult. So many people out there suffering with this sort of thing. So difficult to share with people when sometimes it becomes easier to just shut up and suffer in silence, isn't it :( <br><br>I hope you and BBQ both make your way out of fibro land.Suehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-44143054846753352542009-05-15T00:38:00.000+10:002009-05-15T00:38:00.000+10:00It is great to see more people promoting awareness...It is great to see more people promoting awareness about M.E. Having lived with it for 6 years now and spending most of my 20's asleep I have a lot to catch up on. To think 6 years ago having a morning shower would put me back in bed and now I'm able to study health science at uni and work a bit, I have to keep reminding myself how far I've come, especially when I thought life was over. It's important to give people hope, a lot of other peoples articles helped me. Thank you, you're all doing a great job.Kristinanoreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-47227328121279114452009-05-15T03:12:00.000+10:002009-05-15T03:12:00.000+10:00I recommended Natural Capitalism? Weird...maybe m...I recommended Natural Capitalism? Weird...maybe my 14 year old is right, I really am losing my mind. ;-)Jenniferhttp://www.blogger.com/profile/14314188298401214441noreply@blogger.comtag:blogger.com,1999:blog-4879615387850345622.post-68494131086205210112009-05-20T01:28:00.000+10:002009-05-20T01:28:00.000+10:00Hi Kristina - wow, it definitely sounds like you h...Hi Kristina - wow, it definitely sounds like you have come a long way. It's funny, isn't it, the way you have to keep reminding yourself how far you've come? Thanks for the feedback. It feels funny writing things that give people hope because part of me feels like, "Who am I to say these things and give some people false hope who may never get better?" But that is surely one of the stupider things I tell myself :) Thanks for commenting.<br><br>Jennifer - yeah, you did recommend it, ages ago, I can't remember where. I'm almost positive it was you. So yeah, maybe you're about to go whacko :)Suehttp://www.blogger.com/profile/01122659239039900398noreply@blogger.com